Tuesday, December 28, 2010
Memories
On Christmas Eve Kadence and Shelby ran into bed because they knew they needed to go to sleep or Santa wouldn't come. Shelby surprisingly went to sleep immediately. Kadence....not so easy. At one point she ended up calling for her daddy by saying, "Daddy my cheeks hurt....Daddy my cheeks hurt..." When he got in her room he said she had the biggest smile on her face and told him how much her cheeks hurt. He told her she needed to go to sleep and so she closed her eyes (with a GIANT smile) and tried her best. After about an hour she finally went to sleep.
Today Shelby told us that she wanted to go to the North Pole. We asked her how she would get there since it was so far away and she said, "I'll follow Santas footprints." She is one clever little bugger.
The other day I was telling Kadence she'd be going to the dentist soon. She always takes some prepping before any sort of appointment or else her anxiety gets the best of her. We talk through all of her concerns and answer all her questions and it seems to make it go better for everyone. As we were talking she asked what the dentist's name was. I told her that it was Cam. She then said, "Cam? I don't get it." It was really funny. It was like she thought I was telling a joke or teasing her. I then had to explain that the dentist's name was Cameron and he liked to be called Cam, Dr Cam or Dentist Cam. It was funny that Cam was confusing considering her preschool class has a kid named Rowdy.
Shelby has a cold and with the cold she has a cough. The other morning she woke up and climbed in bed with me. (At like 9 am) As we were laying there, she started coughing. Then she told me, "I have a yucky cough....a really yucky cough." She coughed again and said, "See there it is! I need a popsicle." No matter whats wrong with her all she needs is a popsicle to make it better.
We went to the movies today with a giftcard that our Aunt Barb gave us. While we were there the girls did GREAT! For a 2 hour movie I couldn't have imagined better behavior. Toward the end Shelby was doing the up and down in her chair that she does when she's having a hard time sitting still. She eventually decided to steal her daddy's coke. He went to take it away and she said, "You need to share." Smart girl!!
Kadence is ALWAYS singing. If she isn't singing, she's humming. She loves music and anything to do with music. She knows the words to many songs and surprises me all the time with new songs. Christmas I think has been her favorite time of year for singing. She learned: Frosty the Snowman, Rudolph the Red Nosed Reindeer, We Wish You a Merry Chirstmas (2 verses), Jingle Bells, Up On the Housetop, Away in a Manger, Silent Night, Hark the Harold Angels Sing (Not too clear for most of the song), A Song About Santas Twinkling Eyes (From preschool), and pretty much any other song she heard she would hum the tune for the rest of the day. It's amazing how she just soaks up music.
The girls were both so cute to watch whenever we would talk about the story of Jesus' birth. They would go straight to their Little People nativity and act out all of the scenes. They knew so much about all of the characters and even put together that Santa brings gifts just like the wisemen did. Their favorite pieces were the angel, Mary, Joseph and Jesus although Shelby was really fond of the cow. We tried really hard to focus on the true meaning of Christmas this year. If you asked Kadence what the angel told the Shepherds she would say, "Do not fear, baby Jesus is here." It was really cute.
When we took the girls to visit Santa we tried to prepare them for the occasion by asking them what they would ask for. We told them that they only get to ask for one present. Shelby immediately said she wanted a gingerbread man. Seriously? It took me forever to even understand what she was saying, but a gingerbread man?! Kadence put much more thought into hers on our drive to the mall. She would ask questions like "Can Santa make Barbies?" I told her he can and she kept on thinking. When we arrived at the mall, Shelby was sleeping so I figured she for sure would have a different request when I woke her up....NOPE, she still wanted a gingerbread man! Kadence decided she wanted a doll. We weren't sure if Shelby would sit on Santas lap, but once it was their turn they both took of running and jumped right onto his lap. It was really fun and I was so happy that both girls sat and talked with Santa this year. It was hard finding a gingerbread man gift, but I found a gingerbread man figurine, notepad, and book which made Shelby VERY happy. Kadence got two dolls, a Cinderella Baby and a Toddler Belle.
I have an inflatable Snowman in the front yard that struggled occasionally when we'd turn it on. It just took longer to inflate and stand up some days which meant for a while it would lay face down in the snow. One time we turned it on as we were leaving the house. Kadence could see it from the driveway and said, "Mommy somebody killed your snowman!"
These are a few things that I don't want to forget and I'm sure there will be many others throughout the next year.
Friday, December 17, 2010
Neighbor Gift Idea
The first is really simple. I went to the dollar store and bought tons of wrapping paper and scotch tape. (Yes, they sell the actual Scotch tape brand) You tie it together and put a note on it that reads, "Since November you've been shopping, barely sleeping, hardly stopping. Now it's late and you're in a scrape, out of paper, out of tape. Hope this wrap has saved the day, have a Happy Holiday!" I added a cup of hard candy that I made to go along with it.
Wednesday, December 8, 2010
My New Shelf
Ornaments
Hanukkah
SNOW
Tuesday, December 7, 2010
Very own Christmas trees
Daddy setting up Kadence's tree
It was such a nice night, and the girls were so happy. I love that my kids are so happy and so excited about the smallest things. They are so easy to please and I love watching the enjoyment on their faces as we do new things and make new memories.
Time to play catch up!
Friday, November 5, 2010
Pretty Proud
Saturday, September 25, 2010
City Deals
http://www.citydeals.com/?ref=CDUNTU4NTk
I will get credit for referring you...which I would LOVE. Thanks in advance, happy shopping!!
XTERRA
Sunday, September 19, 2010
Great Deal
http://www.freebies2deals.com/2010/09/tinkerbell-and-great-fairy-rescue-blu.html
It would all need to be done tonight or tomorrow in order to make it work right.
I'm not a huge fan of Tinkerbell, but the girls like her and why not when its so cheap?! I hope this has helped at least one person out there save money.
Monday, September 13, 2010
Babies
Wednesday, September 8, 2010
Preschool!
David was able to talk a teacher into watching his class for 5 minutes before lunch so that he could use his lunch to come with me to drop Kadence off for school. He has always wanted to be there for the first day of preschool and Kindergarten. (What a great dad!) When we walked to the door she hung up her backpack and ran off to play. Then she ran back, gave us a quick hug, then went back to playing. She didn't have the slightest bit of hesitation leaving us. As some of you know, that is a BIG improvement from a few years ago. She used to barely make eye contact when people talked to her and never left my side. She really has come out of her shell.
I thought that I might have a hard time leaving her, but I did amazing! No tears from me. Although things like this make me so grateful that our sweet little miracle is attending preschool with other children her age and will fit right in developmentally. It blows my mind that she is so 'normal' compared to what we thought she might be at 4. I feel incredibly blessed!
Now, I didn't have a hard time and neither did David but her little sister Shelby did. She just kept saying that she wanted her Kay Kay. (She knows how to say Kadence, but calls her Kay Kay instead) I tried to distract her by asking if she wanted to go shopping with me, "No thanks mommy" Then I asked if she wanted to go get a drink, "No thanks" I asked if she wanted to get a book, "No" The poor thing is absolutely devastated by her sister leaving her. Luckily the preschool has a 3 year old class so Shelby only has to wait until next year. It will be nice for me to have 2 1/2 hours without kids two days a week so I can take a class up at the college....but lets not get ahead of ourselves.
On the way to pick Kadence up, Shelby told me "I missing my Kay Kay" She was so excited to go pick her up! Kadence was excited to see us too. She didn't have a lot to say other than she had fun. I asked her if they learned the rules, she said "Ya". I aksed her what she learned and she said, "I don't know." She made a foam visor that you are supposed to put stickers on, but it came home without any stickers on it. She said she didn't want them on there.
Tuesday, September 7, 2010
Kadence's MRI
"Stable appearance of linear fluid focus in the upper to mid ventral portion of the cord diagnostic considerations include a partial ventral cord schisis versus anterior localization of the central canal."
Ok, I know that sounds like a lot of medical jargon, but when I broke it down into sections it kind of started to make sense. The linear fluid in the upper to mid ventral portion of the cord is stable....GREAT!!! But then it is saying that she either has partial ventral cord schisis OR anterior localization of the central canal. I of course googled a bit and haven't been able to figure too much out on my own. All I have found suggests that the partial ventral cord schisis points toward a tethered or split cord. That would be absolutely devastating. It is actually what we have feared the most in all of this. We would most likely have to un tether her cord in order to move forward with treatment which is very risky. I hope and pray this is not what she has. I couldn't figure out what the anterior localization of the central canal means at all other than I know the word anterior means at or near the front.
I don't know why I wait to look these things up until I am at home alone. I just want to break down and cry....then I realize crying doesn't make it go away, nor does it make me understand it any better. All I can do at this point is wait until November 11th when we get Kadence's next cast put on and we can talk to the Dr's, and pray.....A LOT!
Saturday, September 4, 2010
Fountains!
Day Care
The Things Kids Say...
The other day Kadence was looking at a picture that hangs in my front room. In it I am VERY pregnant with Shelby and Kadence is hugging the picture. (Although she calls it listening to it because her head is against my belly) She asked me if Shelby was in my belly. I told her yes. She then said, "Did you eat her?" It cracked me up!
Shelby walks around the house saying "Bibby bobby BOO!" (Bibbity Bobbity Boo) The way she says it makes me laugh every time.
Tonight David went to hand Kadence to me so I could bring her to bed. He bounced her on his knee thinking I would catch her. Instead he just rammed her head into the underside of my boob. He then asked me if my boob was ok. (Not worried about me of course, just my boob.) I told him, "Well it wasn't comfortable, but its not like it fell off." To which Kadence very quickly replied, "If your boob fell off mom, daddy would have to help you fix it!"
When Shelby wakes up in the morning she yells, "Mommmm, Mom, Mommy..." When I get in there to get her, she says "Here I am!!" Its like she thinks I can't find her which is better than the truth...I'm too lazy to get my butt out of bed.
These are just a few things they have been saying lately that crack me up and make me so happy that they're mine forever!
Tuesday, August 10, 2010
Kadence's MRI
While on the phone I also set up Kadence's next casting. It will be on November 11th which means she has another Halloween out of cast!! I explained to the care coordinator that we no longer want Kadence in casts between May and August because she just gets way too overheated. David and I put a lot of thought into what was best for Kadence and felt that it was best. She gets so hot that we can't even go outside until after 7 on most days and this was the most mild beginning to summer we've had in a long time. Plus, Kadence gets a lot of correction out of her first casting and then just stays the same so we figure why put her through the misery. She even had to come out of an air conditioned dance room because she got too overheated. She usually goes backwards while in a brace, but quickly regains ground in her first casting....and then stays there. We don't think we'll get her curve any better than mid 40's realistically, but when she is a woman and fills out you won't hardly be able to notice. We just need to try to keep her down around the 40's so that she is at a safe-ish degree when we fuse rods when she is 13 or 14.
Also, a little update on Kadence's current brace. She ended up getting pressure sores from her brace which means she has to go back in to see if she needs to get remolded for a new brace or if they can just alter her current brace. Most kids keep their brace off completely while letting the pressure sores heal, but Kadence slumps over so quickly that we had to put it on for 4 hours a day. We ended up putting it on while she slept at night so that she would get about 10 hours a day. It's all healed now and she is getting a new sore in a different spot that we are watching. Until it is an open sore we put her brace on the same as usual. We have an appointment to go get it all figured out on August 18th.
That's the update, I'll keep everyone posted on any changes.
Friday, August 6, 2010
5 years?!
After our fantastic date I was slapped in the face with reality. I had to call Primary Childrens and pre register Kadence for her MRI tomorrow. I hate the MRI's the most! It doesn't make much sense, but I do. They are the simple, low risk, fairly quick, and by far the most least invasive thing she has to go through but I absolutely hate them. They will be checking to see if she still shows signs of split cord, and if she still shows fluid in front of her vertebrae. If she has to have one we're hoping for the fluid....we're praying for nothing, but it's not our choice. The split cord would complicate things in a big way. Most people with split cord are severely physically handicapped which is what has the Dr's stumped. It showed up on her last MRI, but it just doesn't make any sense to them. She hasn't ever made much sense to Dr's, and I'm starting to realize that can be a good thing sometimes. We're hoping for the best, and I'll keep everyone posted.
Wednesday, August 4, 2010
Wordy Wednesday
- Billy Madison
- Bio Dome
- 50 First Dates
- Anchorman
- Cinderella
I love funny movies that are pointless other than making you laugh. I just love the silly stupid humor and always know I can watch them to cheer up on a bad day. Of the Disney movies, I have always liked Cinderella the best. Not so much because of Cinderella, but because of the mice.
Top 5 restaurants:
- La Ferrovia
- Chilis
- Famous Daves
- Chick-fil-a
- Costa Vida
Ok, none of these are very expensive but all are so delicious. No matter what we always end up at the same place on date night. In fact, tomorrow we will be celebrating our anniversary (early) at La Ferrovia. If you haven't been there....GO! It's a nice little cozy place with real authentic Italian. I love it and have been going since I was little. My mom knows the owner and its a family regular.
Top 5 treats:
- Peanut M&M's
- Haribo Gummy Bears
- Peachy O's
- Purple bags of Skittles
- Pretzel M&M's
Anyone who knows me knows that I have a BIG sweet tooth. I can't get enough candy and actually end up eating it for lunch and breakfast most days. I snack on it all day long and lean more towards fruity than chocolate.
Here were a few of my top 5's, hope you enjoyed!
Kadence's Journey Pt. 4
We got news that Kadence was going to be transferred to Logan Regional Hospital because she was just working on learning to breath and eat which they were equipped to handle. We were SO excited!! We would finally be able to sleep in our own beds! The day of the transfer we received a call that she wasn't being transferred. Then we received a call that said she would be transferred, but not to Logan Regional. One of the visitors of another baby had been exposed to the chickenpox which meant Kadence possibly could have been too. She needed to go to isolation and Logan Regional doesn't have isolation rooms in their NICU. So they told us she would be going to McKay Dee. We were ok with that because at least we didn't have to make the drive everyday. Before Kadence left, they did a vision test and also did a chromosome karyotype. The vision test came back that she couldn't see at all. She didn't respond to the test at all. The person who administered the test said that it was very apparent she could see and that her body must have been trying to rewire her connection between her brain and her eyes. He told us not to worry because infant brains are able to rewire bad connections very easily. Not worry?! Ya right! They came to talk to us about her EEG, and told us that she had two lesions in the white matter of her brain. They also told us that it showed she was brain dead at the time. Luckily we had a moving happy little baby in our arms while they told us. This would explain why her brain was needing to do some rewiring. Her chromosome karyotype was done to see if they could see why she got hydrops. It came back totally normal. She was getting better daily and we were wanting her to go faster so we could take her home. They would let her come home on oxygen, but they needed her to be eating well before they could release her. That is what took the longest. David used to sing Eye of the Tiger while he fed her and it cracked me up! The time finally came to do her carseat test. This is a test to see if they can handle being in the car seat. They keep the monitors on and see if it causes their oxygen to drop or their heart rate to increase. For some reason they took off Kadence's oxygen to do the test. We left to get our things packed up and were so excited we would be taking our sweet baby home. When we got back to the hospital they told us we couldn't take her home for two more days....Grandpa's birthday! They said that she did great without oxygen to their surprise and would be going home without it. They have to monitor them for 48 hours to make sure they can handle room air so she would need to stay in the hospital for 2 more days. We felt defeated, we were so excited to finally go home and sleep as a family under the same roof and now we had to wait. We knew it was best in the long run and were excited we didn't have to take home oxygen. She did great without oxygen and on August 5th we were able to take home our sweet 5 pound 9 ounce baby! During Kadence's month long stay in the hospital David and I learned more medical terminology than we thought we ever needed, how much family meant to us, and how much we meant to each other. It helped us to grow fast in a short amount of time and we learned how strong a tiny little baby can be!